Monday, February 21, 2011

Locked and Loaded

The official date for my Pulmonary Fibrosis swim has been locked in: April 15, 2011. What a way to spend Tax Day! (Hey, BTW you could SAVE on your 2011 taxes by making a tax-deductible contribution to the Coalition for Pulmonary Fibrosis: http://www.firstgiving.com/karenhiser)

I've been noticing a lot of unusual donation amounts on my First Giving page. One of my friends recently clued me in. People are trying to bump me up to the next round number in mileage. Love it! I need (or I should say that all of the PF patients need) $190 to get to the next increment--2.25 miles.

Will you help? Please pass this along to your friends using one of the buttons below, or get your 2011 tax deduction today!

Monday, February 7, 2011

Did You Know? NFL Player's Tragic Death Gives Life to Pulmonary Fibrosis Patient

As football season wraps up, and the post-Super Bowl hype dies down, it seems an opportune time to write about Chris Henry, former Cincinnati Bengals receiver who died in late 2009 following a fall from the back of a pick up truck.

The only treatment for Pulmonary Fibrosis is a lung transplant, and Chris' untimely and tragic death enabled Pulmonary Fibrosis patient Tom Elliott to receive a life-saving transplant. Chris' mother's brave decision to donate her son's organs saved Tom's life and the lives of two other organ recipients.

With further funding and research, scientists can find a cure for Pulmonary Fibrosis -- a cure that doesn't require one person to lose their life in order to save another.

Watch the CBS Sports special on Chris and his organ recipients.
Read more about Tom Elliott's Pulmonary Fibrosis experience.

Use the buttons below to share this blog post with your football friends to help raise awareness about Pulmonary Fibrosis or drown me in donations for my Swim to Breathe fund raising campaign.

Friday, February 4, 2011

I didn't sink but...

After a week plus hiatus, I finally got back in the pool for several training swims this week. Amazingly, I didn't sink, but in the short hour that I swam, another 5 people died from Pulmonary Fibrosis and 6 more people were diagnosed with this incurable, untreatable disease which gradually (or rapidly) robs its victims of their ability to breathe.

Pulmonary Fibrosis is scarring of the lungs, typically from unknown causes. Two-thirds of Pulmonary Fibrosis patients die within 5 years of diagnosis. Without a cure or treatment, the survival rate is effectively zero.

Pulmonary Fibrosis kills 40,000 people each year, the same number as breast cancer.

University of Texas research Hua Tang, PhD, was recently awarded at $377k NIH grant to study the protein kinase D (PKD), which may have some effect on Pulmonary Fibrosis development. Click here to read more about Tang's Pulmonary Fibrosis study award.

What can you do to help? Use the buttons below to share this blog post with your friends to help raise awareness about Pulmonary Fibrosis or drown me in donations for my Swim to Breathe fund raising campaign.

Treasure each breath, treasure each moment!